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Those That
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Compassionate Allowance Conditions
Coffin-Lowry Syndrome
Congenital Lymphedema
Congenital Myotonic Dystrophy (Effective 9/16/2017)
Cornelia de Lange Syndrome - Classic Form
Corticobasal Degeneration
Creutzfeldt-Jakob Disease (CJD) – Adult
Cri du Chat Syndrome
Degos Disease - Systemic
DeSanctis Cacchione Syndrome
Dravet Syndrome
Early-Onset Alzheimer’s Disease
Edwards Syndrome (Trisomy 18)
Eisenmenger Syndrome
Endometrial Stromal Sarcoma
Endomyocardial Fibrosis
Ependymoblastoma (Child Brain Cancer)
Erdheim Chester Disease
Esophageal Cancer
Esthesioneuroblastoma
Ewing Sarcoma
Farber Disease (FD) – Infantile
Fatal Familial Insomnia
Fibrodysplasia Ossificans Progressiva
Follicular Dendritic Cell Sarcoma - metastatic or recurrent
Friedreichs Ataxia (FRDA)
Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult
Fryns Syndrome
Fucosidosis - Type 1
Fukuyama Congenital Muscular Dystrophy
Fulminant Giant Cell Myocarditis
Galactosialidosis - Early and Late Infantile Types
Gallbladder Cancer
Gaucher Disease (GD) - Type 2
Giant Axonal Neuropathy
Glioblastoma Multiforme (Brain Cancer)
Glioma Grade III and IV
Glutaric Acidemia - Type II
Head and Neck Cancers - with distant metastasis or inoperable or unresectable
Heart Transplant Graft Failure
Heart Transplant Wait List - 1A/1B
Hemophagocytic Lymphohistiocytosis (HLH) - Familial Type
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