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Those That
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Compassionate Allowance Conditions
Hepatoblastoma
Hepatopulmonary Syndrome
Hepatorenal Syndrome
Histiocytosis Syndromes
Hoyeaal-Hreidarsson Syndrome
Hutchinson-Gilford Progeria Syndrome
Hydranencephaly
Hypocomplementemic Urticarial Vasculitis Syndrome
Hypophosphatasia Perinatal (Lethal) and Infantile Onset Types
Hypoplastic Left Heart Syndrome
I Cell Disease
Idiopathic Pulmonary Fibrosis
Infantile Free Sialic Acid Storage Disease
Infantile Neuroaxonal Dystrophy (INAD)
Infantile Neuronal Ceroid Lipofuscinoses
Inflammatory Breast Cancer (IBC)
Intracranial Hemangiopericytoma
Jervell and Lange-Nielsen Syndrome
Joubert Syndrome
Junctional Epidermolysis Bullosa - Lethal Type
Juvenile Onset Huntington Disease
Kidney Cancer - inoperable or unresectable
Kleefstra Syndrome (Effective 9/16/2017)
Krabbe Disease (KD) – Infantile
Kufs Disease - Type A and B
Large Intestine Cancer - with distant metastasis or inoperable, unresectable or recurrent>
Late Infantile Neuronal Ceroid Lipofuscinoses
Leigh’s Disease
Leiomyosarcoma
Leptomeningeal Carcinomatosis
Lesch-Nyhan Syndrome (LNS)
Lewy Body Dementia
Liposarcoma - metastatic or recurrent
Lissencephaly
Liver Cancer
Lowe Syndrome
Lymphomatoid Granulomatosis - Grade III
Malignant Brain Stem Gliomas – Childhood
Malignant Ectomesenchymoma
Malignant Gastrointestinal Stromal Tumor
Malignant Germ Cell Tumor
Malignant Multiple Sclerosis
Malignant Renal Rhabdoid Tumor
Mantle Cell Lymphoma (MCL)
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